New England Regional Spinal Cord Injury Center

The lead site of the New England Regional Spinal Cord Injury Center Network is the Boston University Medical Campus (BUMC); As the first civilian spinal cord injury rehabilitation facility in the country, the New England Spinal Cord Injury Center (NERSCIC) at BUMC has nearly 60 years of experience providing comprehensive care, as well as innovative research and educational opportunities for individuals with SCI.  NERSCIC was also one of the first SCI Model System Centers in the nation. NERSCIC has created a unique organizational model among SCI Model System Centers in having forged a regional partnership of a major academic research institution, BUMC in Boston, MA, with three outstanding clinical institutions: Gaylord Hospital in Wallingford, CT; Hospital for Special Care (HSC) in New Britain, CT; and an affiliated partner, Northeast Rehabilitation Network (NRH), based in Salem, NH and surrounding communities in MA.

Each of the NERSCIC sites brings unique strengths to the NERSCIC Network. BUMC serves a socio-economically and racially diverse urban population and, in conjunction with Dr. Alan Jette at the BU School of Public Health (BUSPH), provides extensive research expertise and experience to all of NERSCIC’s activities. Gaylord Hospital is a prominent Long-Term Acute Care Hospital (LTACH) collaborating with Yale-New Haven that serves a higher proportion of patients with medically complex conditions in a suburban/rural locale. HSC is a longstanding LTACH located in Central CT working with Hartford Hospital, and sees an older, primarily urban patient population more likely to be low-income. Our affiliate, NRH, participates in NERSCIC’s clinical capacity building and outreach activities; through its extensive network of outpatient clinics, it provides a rich recruitment base for NERSCIC’s research studies.

New England Regional Spinal Cord Injury Center Projects

 

Title Type Start Date End Date
My Care My Call Independent 10/1/2011 9/30/2016
Missing Links: SCI-FI Lifespan Independent 10/1/2011 9/30/2016
Evaluating the sensitivity and responsiveness of the SCI-QOL CATs Modular (Joint) 10/1/2011 9/30/2016
Equity and Quality in Assistive Technology (EQuATe) Modular (Joint) 10/1/2011 9/30/2016
Enhancement and Evaluation of the SCI-FI Instrument (SCI Functional Index Computer Adaptive Testing) Modular (Joint) 10/1/2011 9/30/2016

New England Regional Spinal Cord Injury Center Publications

 

Title Author Journal Year
A pilot study of a telehealth intervention for persons with spinal cord dysfunction Houlihan BV, Jette A, Friedman RH, Paasche-Orlow M, Ni P, Wierbicky J, Williams K, Ducharme S, Zazula J, Cuevas P, Rosenblum D, Williams S. Spinal Cord 2013
Development and Initial Evaluation of the Spinal Cord Injury-Functional Index (SCI-FI) Jette AM, Tulsky DS, Ni P, Kisala PA, Slavin MD, Dijkers MP, Heinemann AW, Tate DG, Whiteneck G, Charlifue S, Houlihan B, Williams S, Kirshblum S, Dyson-Hudson T, Zanca J, Fyffe D. Archives of Physical Medicine and Rehabilatation 2012
Developing a contemporary functional outcome measure for spinal cord injury research Slavin MD, Kisala PA, Jette AM, Tulsky DS Spinal Cord 2010
Wheelchair breakdowns, consequences and impact on people with traumatic spinal cord injury McClure, L.A.; Boninger, M.L.; Oyster, M.L.; Williams, S.; Houlihan, B.; Lieberman, J.A.; Cooper, R. Archives of Physical Medicine and Rehabilitation 2009
Computer and Internet Use by Persons After Traumatic Spinal Cord Injury Goodman, N.; Jette, A.; Houlihan, B.; Williams, S. Archives of Physical Medicine & Rehabilitation 2008
Toward a taxonomy of rehabilitation interventions: Using an inductive approach to examine the "Black Box" of rehabilitation DeJong, Gerben; Horn, Susan D.; Gassaway, Julie A.; Slavin, Mary D.; Dijkers, Marcel P. Archives of Physical Medicine and Rehabilitation 2004
Patterns of Internet use by persons with spinal cord injuries and relationship to health-related quality of life Drainoni, Mari-Lynn; Houlihan, Bethlyn; Williams, Steve; Vedrani, Mark; Esch, David; Lee-Hood, Elizabeth; Weiner, Cheryl Archives of Physical Medicine and Rehabilitation 2004
A pilot study of functional access to public buildings and facilities for persons with impairments Thapar, Neela; Warner, Grace; Drainoni, Mari-Lynn; Williams, Steve R.; Ditchfield, Holly; Wierbicky, Jane; Nesathurai, Shanker Disability and Rehabilitation 2004
Health related quality of life outcome measures Andresen, E. M.; Meyers, A. R. Archives of Physical Medicine and Rehabilitation 2000
From function to felicitude: Physical disability and the search for happiness in health services research Meyers, A. R. American Journal on Mental Retardation 2000
Enabling our instruments: Accommodation, universal design, and access to participation in research Meyers, A. R.; Andreson, E. M. Archives of Physical Medicine and Rehabilitation 2000
Predictors of secondary conditions in a sample of independently living adults with high-level spinal cord injury Meyers, A. R.; Mitra, M.; Walker, D. K.; Wilber, N.; Allen, D. Topics in Spinal Cord Injury Rehabilitation 2000
Prevalence of secondary conditions in veterans with spinal cord injury and their interference with life activities Prysak, G. M.; Andresen, E. M.; Meyers, A. R. Topics in Spinal Cord Injury Rehabilitation 2000
The rehabilitation of people with traumatic brain injury Woo, Buck H.; Nesathurai, Shanker N/A 2000
Employment after spinal cord injury: An analysis of cases from the Model Spinal Cord Injury Systems Krause, J. S.; Kewman, D.; DeVivo, M. J.; Maynard, F.; Coker, J.; Roach, M. J.; Ducharme, S. Archives of Physical Medicine and Rehabilitation 1999
The "Boston Model" of managed care and spinal cord injury: A cross-sectional study of the outcomes of risk-based, prepaid, managed care Meyers, A. R.; Bisbee, A.; Winter, M. Archives of Physical Medicine and Rehabilitation 1999
Sexuality after spinal cord injury: Answers to your questions Ducharme, S. H.; Gill, K. M. Topics include sexual anatomy, sexual function, intercourse, fertility, birth control, pregnancy, parenting, body image and self esteem, relationships and marriage, sexual effects of smoking and drugs, and sexually transmitted diseases (STD). Appendices include information resources and listings of Independent Living Centers in the U.S. and Canada. 1997