A Randomized Practical Behavioural Trial of Curriculum-Based Advocacy Training For Individuals with Traumatic Brain Injury and Their Families

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Reference Type:
Journal Article
Accession No.:
Brain Injury
Year, Volume, Issue, Page(s):
2015, vol. 29, issue , pp 13-14
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PRIMARY OBJECTIVE: To test whether a curriculum-based advocacy training programme improves advocacy behaviour when compared to a matched group engaged in self-directed advocacy activities. RESEARCH DESIGN: Community-based randomized practical behavioural trial. METHODS AND PROCEDURES: Adults with moderate-severe TBI 1 or more years post-injury and their family members were recruited in Minnesota (4 years), Iowa and Wisconsin (each 3 years) and randomized into a curriculum-based or self-directed advocacy training group. Both groups met on the same day, at separate locations in the same city, once per month for 4 consecutive months. MAIN OUTCOMES AND RESULTS: Pre-post written and video testimony were rated using the Advocacy Behaviour Rating Scale (ABRS). Mean ABRS scores increased after intervention in both groups (curriculum n?=?129, self-directed n?=?128), but there was no significant difference in this increase between groups. When groups were combined, a significant pre-post improvement in mean ABRS scores was observed. CONCLUSIONS: Curriculum-based advocacy training was not superior to a self-directed approach in improving ABRS scores. A significant improvement in expression of an advocacy message was observed when intervention groups were combined. These findings suggest that bringing together like-minded motivated individuals is more important than programme structure or content in changing advocacy behaviour.
Brown AW, Moessner AM, Bergquist TF, Kendall KS, Diehl NN, Mandrekar J
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