Community participation: Measurement issues with persons with deficits in executive functioning
Archives of Physical Medicine and Rehabilitation
Year, Volume, Issue, Page(s):
2010, vol. 91, issue 9, Supplement 1, pp S66-S71
Article provides an overview of findings on survey responses by individuals without cognitive deficits and reviews the lessons learned during the development of the Community Participation Indicators and the Participation Assessment with Recombined Tools instruments. Survey researchers have found that respondents proceed through 4 processes that draw heavily on executive functions: (1) question comprehension and interpretation, (2) retrieval of applicable information from memory, (3) integration of retrieved information to form a judgment, and (4) configuration or mapping of the judgment to the response choices. Respondents without cognitive deficits frequently make errors because of challenges to their executive functions; it should therefore be anticipated that people with deficits in executive functions will have even greater difficulties providing consistent and accurate responses. The author describes issues in measuring quality of life in persons with cognitive disabilities. She concludes by providing recommendations to increase the likelihood that questions are interpreted as intended, facilitate recall of the information needed to answer questions, optimize estimation strategies, provide user-friendly response options, and obtain accurate responses.
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